Day 45 – Making PD Warrior Friends

Parkinson’s Disease Symbol – The red tulip, with a fringe of white, became the official symbol of Parkinson’s disease at the 9th World Parkinson’s Disease Day Conference in Luxembourg on April 11, 2005 (although the flower had been associated with Parkinson’s awareness since the early 1980s).

A couple of months ago I joined a closed group on Facebook for people diagnosed with Parkinson’s Disease and their caretakers. And, I’m so happy I did. The individuals in this group share their symptoms, struggles, questions, information and experiences with their diagnosis. The outreach and connections are sobering and meaningful. Spouses, parents, and children of PD patients ask questions and inquire on how to handle and support their husband, wife, father, mother, son or daughter.

And then there are some who are really struggling with a PD diagnosis. They need uplifting and need to know they are not alone. We are all in this fight together. The support for one another is tremormendous and I’ve made some awesome connections 😊. We are PD Warriors!

It’s also a great forum to provide inspirational stories and make each other laugh because laughter releases dopamine which us PD Warriors are short of 🤷🏽‍♀️😂.

Emotional Well-being: Personally, this is the area that I find is sometimes a weak point for me. Every once in a while, I just don’t feel like exerting any energy or effort to caring about anything. I get frustrated and down that it takes me a lot longer to do things, that people have to wait for me because most days I’m slow to move, that I focus maniacally on things that distract me from what I need and intended to do, that I’m broken.

Every now and then I have an “off” day and I’ll break down crying. I do feel better after I do. But the reality is it’s hard sometimes being vulnerable and asking for help. Sometimes I get annoyed because people want to wait on me hand and foot, but they’re only trying to help, and I need to remember that. Being a part of the closed PD group, reading their stories, I know too that I’m not alone 😊.

I found this great article on Parkinsons.org on Emotional Well-Being. I also found a natural supplement called St. John’s Wort that really help ones mood. I went off of the supplement in September, but I feel I function better on the supplement. So will add it back into my daily routine. I’ve posted information on St. John’s Wort from the Mayo Clinic – https://www.mayoclinic.org/drugs-supplements-st-johns-wort/art-20362212

https://www.parkinson.org/Living-with-Parkinsons/Managing-Parkinsons/Emotional-Well-Being


Now let me share some laughs and lighten up this blog…

I’ve found that my new best task in the kitchen is whisking the eggs 🥚. #fluffiesteggs

Putting on mascara and lipstick 💄 can get scary messy. Lol 🤡 #qtipcleanup

Twerking come easy. #workitgirl

Walls jump out at me and it takes some serious skill to trip over flat surfaces.🤣 #gravitywinsover

I could finish a novel while in the restroom. #constipationstruggleisreal.


Have a blessed and beautiful day everyone. Don’t forget it Monday and that means MNF 🏈. Oh, and by the way, my 49ers are kickin’ some a$$. We are for real this season 🙌🏽♥️. No joke 🃏.

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Day 44 – No Dollies Allowed!

Nope, not playing house today. I’d rather go out and play in the dirt. I’d rather watch my dad make fishing lures and go fishing. I’d rather climb a tree. I’d rather draw horses. I’d rather build a puzzle. I’d rather play records. I’d rather ride my bike. I’d rather just daydream, and nope, I’m not gonna play with your dollies.

What triggered this memory of my childhood? It was a video I saw of a cute baby girl climbing out of her crib so she could sleep in her brother’s bed. He helped her climb our of her crib, then climbed back into his baby sister’s crib to grab her dolly for her. I thought to myself, I never had one of those toys. Sis had a Raggedy Ann doll that she always slept with and cried on when she got in trouble. Her Ann doll was raggedy that’s for sure.

I only had two little dolls that were gifted to me from my Uncle who was a Chaplain in the Air Force. When he traveled out of country he would send Sis and I a gift. One doll was from Korea or Japan and the other from Germany. I kept them on my desk with my other belongings.

One day I was switching TV channels and came upon an old 70’s movie with Karen Black in it. Can you guess what the movie was? (I’m probably dating myself here.) It was called Trilogy of Terror – House of Dead Dolls. It was absolutely terrifying to watch as a kid. There was this ugly warrior doll in the movie named Zuni? If you haven’t seen the movie, here’s a link to view a clip of it. I just want to share a visual with you of the nightmares I would have.

After that frightful viewing, I hung my St. Christopher necklaces around both of my dolls and turned them around each night so their faces faced the wall. I thought they would come alive at night and hurt me. I was soooo scared for weeks to turn the light out when I went to bed. I would run to jump on my bed so nothing from under it could grab my feet. I kept my closet door shut every night too. That movie sure did a number on my psyche. Plus Karen Black just plain looks creepy herself.

With Halloween approaching, this would be a good oldie to watch. I guess you could say it was the “It” back in the day. Hopefully I didn’t reconjure old nightmares.

Well with that I’ll say goodnight, sleep tight and don’t let the dollies bite. 👹

Day 43 – Content Needed

Ever had a loss of words? Ever drew a blank? Ever not known what to say? Well that’s me today – a bit of nothingness in my head. I am devoid of content and what to write about. I’m having a total writers block.

Or maybe I should just be truthful. I’m just not feeling myself today. My energy field is a bit mucky.

However, I do just 💗 this emoji though.

So let’s take this time to let my readers send me ideas on what they’d like to know about me, my life, my journey, etc. You can send me a comment, email, inspirational message to mbellish@charter.net. Don’t be shy.

WORD!

So tune in tomorrow for something more meaningful. 🤓 Peace out my friends ✌🏽.

Day 42 – Oh The Santa Ana’s! 💨🔥

The heavy seasonal winds kicked up intensely yesterday. My Halloween decorations are slewn over the front yard. The dogs keep barking as things bang against the house as the wind howls.

But then I watch the morning news and see that the wind is really doing a number in areas across Southern California! We have been previously advised over the past couple of days of the fire 🔥 Red Flag conditions concern that could occur during the Santa Ana Windy season. And here we go again – all too familiar!! Fires have erupted over night in Porter Ranch, Granada Hills, Saddleridge, Northridge, Sylmar, Calimesa, Fontana, Newberry, Moreno Valley.

People have been evacuated from their homes and cannot return until further notice. And there they go off to evacuation centers with their pets in tow 🐶🐱. I have included the FEMA link below showing the 5 P’s of Evacuation.

https://www.fema.gov/media-library-data/1409003859391-0e8ad1ed42c129f11fbc23d008d1ee85/how_to_prepare_wildfire_033014_508.pdf

How did all these fires begin so quickly in so many cities?? Those answers will come. First Responders will be working day and night to fight these fires 🔥 and protect homeowners and the communities. I pray 🙏🏽 for everyone’s safety, to help them all overcome the flames, remediate to control and closure so that everyone can return to their homes soon.

Afternoon update: Amongst the blacked out smoky skies, residents have lost their homes and many structures are in flames. The wildlife run for shelter and away from harm, but where do they go? Sadly, some do not make it to safely 😢. This is a scary and stressful situation, once again, for so many.

California is a beautiful place to live where the sun shines for most months out of the year, however we don’t get to experience all four seasons like many other areas of the country do. People flock to our sunny state for vacations to Disneyland, Universal Studios, Magic Mountain, Knott’s Berry Farm, Hollywood, and our local beaches, mountains and deserts. We don’t experience tornadoes, hurricanes, monsoons, blizzards, ice storms, etc., but we do have our fair share of earthquakes, gusting winds and fires.

Today I will fly out of town for the weekend. I wonder what the skies will look like from above? This is what my eyes see, a hazy orange horizon.

As the evening closes, my thoughts are with those who have been affected by the wildfires and for those who are fighting to combat the flames. I pray for their safety. And for those who will not have the comfort of sleeping in their own beds tonight, I pray for strength and a support group that will help them through this crisis 🙏🏽.

I found the following poem I felt was appropriate for today’s current state:

Morning in the Burned House – by Margaret Atwood, Canadian Poet & Author (1939 – )

In the burned house I am eating breakfast.
You understand: there is no house, there is no breakfast,
yet here I am.

The spoon which was melted scrapes against
the bowl which was melted also.
No one else is around.

Where have they gone to, brother and sister,
mother and father? Off along the shore,
perhaps. Their clothes are still on the hangers,

their dishes piled beside the sink,
which is beside the woodstove
with its grate and sooty kettle,

every detail clear,
tin cup and rippled mirror.
The day is bright and songless,

the lake is blue, the forest watchful.
In the east a bank of cloud
rises up silently like dark bread.

I can see the swirls in the oilcloth,
I can see the flaws in the glass,
those flares where the sun hits them.

I can’t see my own arms and legs
or know if this is a trap or blessing,
finding myself back here, where everything

in this house has long been over,
kettle and mirror, spoon and bowl,
including my own body,

including the body I had then,
including the body I have now
as I sit at this morning table, alone and happy,

bare child’s feet on the scorched floorboards
(I can almost see)
in my burning clothes, the thin green shorts

and grubby yellow T-shirt
holding my cindery, non-existent,
radiant flesh. Incandescent.

Day 41 – Sisters 💞

Up early this morning! Going to support my sis through a routine medical procedure. We are at a brand new facility and she is the first patient to be seen in their surgery center 👍🏽. I’ll be driving Miss Daisy home as well. 🚖.

A little family background: I only have one sister and no brothers, so it’s just Sis and I. We are complete opposites in just about everything we do and are. That goes for likes and dislikes, music, TV shows, fashion, makeup, nails, food and men. Lol! I like the lighter version and she prefers the darker version. Ha ha. 😂She’s dramatic and high-strung 💁🏽‍♀️ and I’m laid back and down to Earth 🌏. I’m adventurous and outdoorsy 🌿🌊🏜🏝, her not so much. She’d rather go dancing and night-clubbing 💃🏽. She looks like our Filipino Father but takes on my Mom’s mannerisms. I look like my Portuguese Mother and am just like my Dad. She says we’re kind of like Donny & Marie, “… a little bit country and a little bit rock n roll”. But that’s not quite accurate. She loves hip-hop and jazz, and I’m more Classic Rock, Folk and Alternative. However, we both love Hawaiian music, it’s what we’ve listened to since youngsters and will never live without.

The things we’ve always had in common is the joy of laughter, fun and Ohana. We love acts of ridiculousness and absurdity.

ʻo koʻu kaikuahine (my sister)

I’m the older sister, although I tell people she’s older. She hates when I do that 😂. We don’t always agree on things and tend to debate over various actions and subjects quite often. She says I counsel her too much, but hey, that’s what Big Sister’s do 🤷🏽‍♀️. Besides I’m the more reasonable one. WORD!

Our parents have both passed on, Dad in 2008 and Mom in 2014. So it is just the two of us now. Between she and I we have six boys. Dad was so excited about this and loved wrestling around with them. They are a tight-knit group and full of love and support for each other.

💙 Cousins 💙

My Father wrote a poem about my sister and I many years ago when we were little. Today I will share it with my followers 👭


💗 Our Makuakane’s Poem to Sis & I 💗

So as I sit here watching her fade in and out from her twilight sleep, always know my Sissy that I love you to pieces.

Day 40 – Oral Health & Parkinson’s Disease

Good day folks! Today I’ve got a bit of the Keto “flu” – feeling a little out of sorts and groggy. This too shall pass in a day or so. Then the energy will kick in. 💪🏽

Today I received a email from ParkinsonsDisease.net entitled: “Is a Dentist Part of Your Parkinson’s Care Team?” Having been in the dental industry since 2003, this email caught my attention. So, I opened the email to read further.

A Surprising Reason to See the Dentist: Oral Hygiene & Parkinson’s – here’s the link. https://parkinsonsdisease.net/living/oral-hygiene-dentist/?utm_source=weekly&utm_medium=email&utm_campaign=44e0743a-a4b2-4824-aaab-eddaee17ace5&utm_confid=sovjvgl57&aGVhbHRoIHVuaW9uIGJsYWg=28ed6d29b903b0eec70b48d80a91d34eaa65c80ace22f56bb76339619faacb26

I recall one of my early obstacles was difficulty brushing my teeth with a manual toothbrush using my dominant right hand. I would have to use both hands which was awkward. My husband would laugh at me. I also had difficulty flossing my teeth. That’s when I decided to use an electric toothbrush gifted to me by one of our dentists. Thank goodness! I found an easier way to brush my teeth and improve my oral healthcare. I also now use the dental floss picks versus a long piece of floss.

Being that I have knowledge of dentistry (although I am not a clinician). Please know that studies have shown that when your mouth is not healthy, your overall systemic health could be unhealthy due to the plaque and harmful bacteria that builds in the openings where the gums have pulled away from the teeth. This is called periodontal disease. Your mouth is the gateway to the rest of your body. The bacteria inflames the gums and that inflammation enters the bloodstream and causes similar inflammation in other vital organs in the body, most common are the brain 🧠 and heart ❤️. Additionally, the harmful bacteria and inflammation plays in 7 out of 8 leading causes of death, including: diabetes, cardiovascular disease, stroke, cancer, chronic lower respiratory diseases, influenza, and Alzheimer’s disease.

So make sure you visit your dentist on a regular basis.

That’s my public announcement for today 😊.

Continuing on… my afternoon consisted of a long nap 💤. I just cannot seem to get my sleep pattern on track. And from the feedback I receive from other PD patients in my support network, I’m definitely not alone. My next experiment will be finding a good oral CBD/Hemp oil (non THC) to help me sleep 🤞🏽. Send me a comment if you have a good, tested recommendation. Thank you.

Now I spend the evening painting my nails and toes black for the Autumn Halloween season 💅🏽. Then watch hockey 🏒 since it’s tis that season too.

The evenings are cooling off here and it’s such a nice change. I bid everyone a good evening and sleep well.

Day 39 – Daily Affirmations

This canvass hangs on my bedroom wall and is a positive reminder to say my daily affirmations. I will stand in front of my mirror, look at myself and say out loud what affirmations I need to hear for the day. Or sometimes before I rise out of bed I will say them. It encourages, motivates and empowers me, and puts me in the right mindset to conquer each day.

Here are some of my daily affirmations which sometimes change:

I am thankful for each new day and will seize every opportunity to make it the best day possible.

I am joyful – my voice lifts me in song and prayer.

I am loved and supported by my family and friends.

I am worthy and deserving of all things good.

I am empowered and will empower others.

I am compassionate, a good listener, and will help counsel others.

I do the right thing!

I am a kind person and will live in kindness.

I am healing.

I have a strong faith that God and the Universe will guide me and will take care of me at all times.

I love you, Marla. You are being the best version of yourself!


Note: If you’re wanting to prepare your own daily affirmations, here is a link that can steer you in the right direction. https://www.psychologytoday.com/us/blog/smart-relationships/201403/affirmations-the-why-what-how-and-what-if


Today is a beautiful day in the high 80’s. I went out today solo and perused some antique shops in downtown Riverside. I took a nice walk around Main Street to get some steps in. Shockingly I found nothing that I needed to purchase. The streets were loud with middle and high school students who were attending Encore High School for the Arts.

Downtown is one of my favorite areas to visit with great eclectic shops and eateries. You have to stop in to Simple Simon’s if you’re in the area. It’s a family-owned establishment open for breakfast and lunch. They make their breads and fabulous baked desserts fresh every day. https://www.simplesimonsbakerybistro.com/

The Riverside Farmer’s Market is a good little weekend morning trek and has fresh vegetables and fruits, fresh breads, beautiful flowers and more – https://yelp.to/qTKq/ylK15UAfD0.

My favorite place to shop for antiques is the Mission Galleria. It’s a 4-story treasure hunters dream (because one person’s junk is another person’s treasure 😊) – https://yelp.to/qTKq/D71QAi6gD0.

Then take a stroll into the Mission Inn, a historic landmark and the cornerstone of Downtown Riverside. This is an absolutely stunning hotel – https://www.missioninn.com/.

Finally, you can complete your Downtown visit and pop into Casey’s Cupcakes for a sweet, delectable bite. Casey was a winner on Food Network’s Cupcake Wars several years ago – https://caseyscupcake.com/.

I’ll end today’s blog with a quote by Louise Hay.

“Think thoughts that make you happy. Do things that make you feel good. Be with people who make you feel good. Eat things that make your body feel good. Go at a pace that makes you feel good.”

– Louise L. Hay, You Can Heal Your Life