A couple of months ago I joined a closed group on Facebook for people diagnosed with Parkinson’s Disease and their caretakers. And, I’m so happy I did. The individuals in this group share their symptoms, struggles, questions, information and experiences with their diagnosis. The outreach and connections are sobering and meaningful. Spouses, parents, and children of PD patients ask questions and inquire on how to handle and support their husband, wife, father, mother, son or daughter.
And then there are some who are really struggling with a PD diagnosis. They need uplifting and need to know they are not alone. We are all in this fight together. The support for one another is tremormendous and I’ve made some awesome connections 😊. We are PD Warriors!
It’s also a great forum to provide inspirational stories and make each other laugh because laughter releases dopamine which us PD Warriors are short of 🤷🏽♀️😂.
Emotional Well-being: Personally, this is the area that I find is sometimes a weak point for me. Every once in a while, I just don’t feel like exerting any energy or effort to caring about anything. I get frustrated and down that it takes me a lot longer to do things, that people have to wait for me because most days I’m slow to move, that I focus maniacally on things that distract me from what I need and intended to do, that I’m broken.
Every now and then I have an “off” day and I’ll break down crying. I do feel better after I do. But the reality is it’s hard sometimes being vulnerable and asking for help. Sometimes I get annoyed because people want to wait on me hand and foot, but they’re only trying to help, and I need to remember that. Being a part of the closed PD group, reading their stories, I know too that I’m not alone 😊.
I found this great article on Parkinsons.org on Emotional Well-Being. I also found a natural supplement called St. John’s Wort that really help ones mood. I went off of the supplement in September, but I feel I function better on the supplement. So will add it back into my daily routine. I’ve posted information on St. John’s Wort from the Mayo Clinic – https://www.mayoclinic.org/drugs-supplements-st-johns-wort/art-20362212
Now let me share some laughs and lighten up this blog…
I’ve found that my new best task in the kitchen is whisking the eggs 🥚. #fluffiesteggs
Putting on mascara and lipstick 💄 can get scary messy. Lol 🤡 #qtipcleanup
Twerking come easy. #workitgirl
Walls jump out at me and it takes some serious skill to trip over flat surfaces.🤣 #gravitywinsover
I could finish a novel while in the restroom. #constipationstruggleisreal.
Have a blessed and beautiful day everyone. Don’t forget it Monday and that means MNF 🏈. Oh, and by the way, my 49ers are kickin’ some a$$. We are for real this season 🙌🏽♥️. No joke 🃏.